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Health and Social Care (Children and Young Adults)
The effectiveness and costs of behavioural approaches to the management of sleep and behaviour problems among disabled children

Researchers: Bryony Beresford, Tricia Sloper, Susan Clarke, Lucy Stuttard and Jennifer Beecham (PSSRU)

Funder: Centre for Excellence in Outcomes in Children and Young People's Services - C4EO

Duration: August 2008 to October 2011

Background

This project investigated the effectiveness and costs of behavioural approaches to the management of sleep and behaviour problems among disabled children. The study was funded by the government funded Centre for Excellence in Outcomes in Children and Young People's Services (C4EO). SPRU collaborated with the Personal Social Services Research Unit at the University of Kent on this project.

The project consisted of two linked and concurrent streams of work on sleep and behaviour problems, it investigated the effectiveness and costs of:

  • early identification and intervention for sleep problems among disabled children;
  • different modes of delivering behaviour management interventions to parents of disabled children.

The project was divided into five overlapping phases:

Phase 1 - Rapid reviews of evidence

Rapid reviews of evidence were carried out on:

  • tools to detect and assess sleep problems, and the effectiveness of sleep interventions;
  • the effectiveness of behavioural approaches to behaviour management interventions.

Phase 2 - Mapping of existing models/services delivering effective sleep and behaviour problem interventions

This phase mapped services/teams delivering sleep and/or behaviour problem interventions which were based on what were understood and accepted to be effective ways of treating or managing sleep or behaviour problems. The mapping exercise was used to draw up a ‘long shortlist’ of possible teams/services for inclusion in the primary research phases (Phases 3 & 4) of the project.

Phase 3 & 4 - Investigating the effectiveness of sleep and behaviour interventions currently being delivered to disabled children

Eight services were selected for the primary research phase. Evidence on the effectiveness of sleep and behaviour interventions were obtained from the following sources:

  • Standard measures of sleep and/or behaviour (primary outcome measures), parental stress and parenting confidence (secondary outcome measures) administered at baseline, immediately and three months post-intervention. (Phase 3)
  • Collection of costs data from services (Phase 3) and families (Phase 4)
  • Interviews with practitioners, parents and children (Phase 4).

Phase 5 - Data analysis, writing and dissemination

The rapid reviews were completed and published first, with the main report and appendices published in 2012. Journal articles and presentations to conferences and professional bodies continues.

Publications and presentations

Show Abstract...

2013

What do we know about the costs and effectiveness of group interventions for parents of disabled children? Invited.
Stuttard, L., Managing Behaviour and Sleep: Group Delivered Interventions for Parents of Disabled Children Conference, Alcuin Research Resource Centre, University of York, York, 25 February 2013.
2012

Alternative models of delivering sleep support. Invited plenary.
Beresford, B., Autism Study Day, Pinderfields Hospital, Wakefield, 7 March 2012.
Managing Behaviour and Sleep Problems in Disabled Children: An investigation into the effectiveness and costs of parent-training interventions: Appendix A - Rapid Reviews, 2012
Beresford, B., McDaid, C. and Sloper, P., Department for Education.
Managing Behaviour and Sleep Problems in Disabled Children: An investigation into the effectiveness and costs of parent-training interventions, 2012
Beresford, B., Stuttard, L., Clarke, S., Maddison, J. and Beecham, J., Department for Education Research Report, DFE-RR204.
Managing Behaviour and Sleep Problems in Disabled Children: An investigation into the effectiveness and costs of parent-training interventions: Annex - Survey instruments and recruitment materials, 2012
Beresford, B., Stuttard, L., Clarke, S., Maddison, J. and Beecham, J., Department for Education, 54 pages.
Managing Behaviour and Sleep Problems in Disabled Children: An investigation into the effectiveness and costs of parent-training interventions: Appendices B-S, 2012
Beresford, B., Stuttard, L., Clarke, S., Maddison, J. and Beecham, J., Department for Education, 120 pages.
Managing Behaviour and Sleep Problems in Disabled Children: An investigation into the effectiveness and costs of parent-training interventions: Summary Report, 2012
Beresford, B., Stuttard, L., Clarke, S., Maddison, J. and Beecham, J., Department for Education Research Report, DFE-RR204a.
Alternative modes of delivering a sleep support programme for parents with disabled children. Invited.
Stuttard, L., Ninth Annual Mental Health Research Network Meeting, York Hospital, York, 9 January 2012.
2011

Sleep problems and disabled children: parent-focused interventions
Beresford, B., British Association for Community Child Health/British Association of Child Disability/Child Protection Special Interest Group North West Regional Meeting, Blackpool, 20 May 2011.
The effectiveness of parent-training interventions to manage sleep and behaviour problems in disabled children. Plenary.
Beresford, B. and Stuttard, L., National CAMHS Conference, London, 18 November 2011.
Families with disabled children: intervening where there are sleep problems. Invited.
Stuttard, L., British Psychological Society Faculty for Children and Young People 13th Annual Conference, Leicester, 22 September 2011.
2010

Behavioural interventions to help parents manage sleep problems in young disabled children: a rapid review
Sloper, P., Association for Child and Adolescent Mental Health Conference on Sleep and Children with Disabilities, York, 7 October 2010.
2009

Supporting parents of disabled children to manage their child's sleep and behaviour: what does research tell us?
Beresford, B., London Disabled Children's Services Strategic Managers' Network Meeting: Commissioning Services for Disabled Children and Young People with Additional Needs, King's Fund, London, 3 December 2009.
The Effectiveness of Behavioural Interventions Which Involve Parents in the Management of Behaviour Problems Among Disabled Children: A rapid review, 2009
Beresford, B., Social Policy Research Unit.
The effectiveness of parent training interventions in improving problem behaviours among disabled children, 2009
Beresford, B., Research Works, 2009-3, Social Policy Research Unit.
Behavioural interventions to help parents manage sleep problems in young disabled children, 2009
McDaid, C. and Sloper, P., Research Works, 2009-2, Social Policy Research Unit.
Evidence on Effectiveness of Behavioural Interventions to Help Parents Manage Sleep Problems in Young Disabled Children: A rapid review, 2009
McDaid, C. and Sloper, P., Social Policy Research Unit.
The evidence and current research on interventions for parents of disabled children with sleep and behaviour problems
Stuttard, L. and Beresford, B., CAMHS Learning Disability Special Interest Group Meeting, York, 12 May 2009.

If you require further information about the project, please contact Bryony Beresford email Bryony Beresford

Summary Report
Associated Research
 
 
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